As many of you know, I am dealing with a medical issue right now that has probably gone undiagnosed for a very very long time and contributed to a lot of things that have been happening over the years! Major Headaches, Back and Neck Pain, Weight Gain, Most of my Major Depression Symptoms and so on....
I am part of a great group of people online who all have the same thing and are going through the same things as me, and some of them are so much worse than I am. I pray daily for them as they have lost their jobs, homes, livelihoods and even spouses because of this terrible disease.
The list of possible causes is as long as my arm and would basically mean everyone in the world is at risk....a scary way of saying they have no idea!
Today, a new friend of mine Heather posted a great poem online and I wanted to share it with you my faithful reader, not as excuses but as a tiny window into what it feels like to be me lately!
I am part of a great group of people online who all have the same thing and are going through the same things as me, and some of them are so much worse than I am. I pray daily for them as they have lost their jobs, homes, livelihoods and even spouses because of this terrible disease.
The list of possible causes is as long as my arm and would basically mean everyone in the world is at risk....a scary way of saying they have no idea!
Today, a new friend of mine Heather posted a great poem online and I wanted to share it with you my faithful reader, not as excuses but as a tiny window into what it feels like to be me lately!
When your head is banging
And you can not see
The world is swaying
PTC!
When your ears are pulsing
And you can not think
This PTC
It really stinks.
When people say
Well you look fine.
But inside you're
really dying.
The pains unbearable
and you can not move
But people still expect the same
from you.
I am not lazy
I'm not lying to you
Keeping train of thought
Is so hard to do.
I have tremors,
pins and needles in my feet and hands.
Some days it feels impossible to
stand.
You don't see the tears I cry.
When I'm alone.
So please be patient with me, look and learn
I thank god that you're not me
who suffers from this dreaded PTC!
Thank you Heather for being brave enough to write down how your feeling and for sharing it with us.
If you want to learn more about PTC which is also called Intercranial Hypertension you can check out this site http://www.ihrfoundation.org/
Thanks for listening.
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