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I wanted to share a poem

As many of you know, I am dealing with a medical issue right now that has probably gone undiagnosed for a very very long time and contributed to a lot of things that have been happening over the years!   Major Headaches, Back and Neck Pain, Weight Gain, Most of my Major Depression Symptoms and so on....

I am part of a great group of people online who all have the same thing and are going through the same things as me, and some of them are so much worse than I am.    I pray daily for them as they have lost their jobs, homes, livelihoods and even spouses because of this terrible disease.

The list of possible causes is as long as my arm and would basically mean everyone in the world is at risk....a scary way of saying they have no idea!

Today, a new friend of mine Heather posted a great poem online and I wanted to share it with you my faithful reader, not as excuses but as a tiny window into what it feels like to be me lately!

When your head is banging

And you can not see

The world is swaying

PTC!


When your ears are pulsing

And you can not think

This PTC

It really stinks.


When people say

Well you look fine.

But inside you're

really dying.


The pains unbearable

and you can not move

But people still expect the same

from you.


I am not lazy

I'm not lying to you

Keeping train of thought

Is so hard to do.


I have tremors,

pins and needles in my feet and hands.

Some days it feels impossible to

stand.


You don't see the tears I cry.

When I'm alone.

So please be patient with me, look and learn

I thank god that you're not me

who suffers from this dreaded PTC!
 
Thank you Heather for being brave enough to write down how your feeling and for sharing it with us.
 
If you want to learn more about PTC which is also called Intercranial Hypertension you can check out this site http://www.ihrfoundation.org/
 
Thanks for listening.

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